Join us for our monthly support group, the Kidney Club. Held virtually the 2nd Sunday of every month, the group is facilitated by Tina Sheridan, a transplant recipient. Each session offers an educational topic combined with an opportunity for open discussion and sharing. You don’t have to walk this journey alone! Participate in the Kidney Club and connect with your peers! Open to patients (CKD, dialysis and transplant recipients), family members, caregivers or anyone in your circle that wants to support you on your journey! Visit our calendar of events for upcoming meeting dates and information.
Dialysis Hope Totes:
We offer patients within the first 30 days of dialysis treatment a Hope Tote, a tote bag containing useful information and items that will help navigating your journey through dialysis a little easier! Each tote bag contains a pill box, hand sanitizer, “You are a Dialysis Patient” book, a Renal Exchange Booklet, information on fluid management and the importance of adhering to your treatment schedule, kidney friendly recipes, flyers on events and programs and other useful information. If you are within the first 30 days of dialysis treatment, speak with your social worker to request your Hope Tote!
Are you a patient or caregiver that is feeling isolated? These are challenging times that we are in and COVID-19 has changed our way of life. You don’t have to feel isolated! We have kidney caregivers standing by! Kidney Caregivers are a trained group of volunteers that conduct weekly (or whatever schedule is needed and agreed upon) telephone visits with patients and caregivers. It’s just a visit — a friendly chat with a new friend that can help you during these challenging times. If you are interested in volunteering for the program or would like a kidney caregiver assigned to you, email email@example.com
The NeKF offers several yearly patient and family outings, including an annual summer picnic and a holiday party for pediatric kidney patients and their families. Kidney disease can be overwhelming and the opportunity to connect with others that have similar challenges is vital to empowering patients. Email firstname.lastname@example.org for more information.
Medical I.D. Jewelry:
The NeKF provides patients with free medical I.D. necklaces and bracelets that contain important medical information in case of an emergency. Contact your social worker for an application or email email@example.com for more information.
The NeKF offers emergency grants to patients in unforeseen, yet resolvable, financial crisis. Grant funds can be used for medical, housing and nutrition expenses. Contact your social worker for an application or email firstname.lastname@example.org. Funding is not guaranteed and is subject to availability.
The NeKF provides funds for non-Medicaid patients to subsidize the cost of travel to and from dialysis treatment units. Contact your social worker for an application or email email@example.com for information. Funding is not guaranteed and is subject to availability
The NeKF provides nutrition supplements for dialysis patients that are exhibiting symptoms of malnourishment. Email firstname.lastname@example.org for information. Funding is not guaranteed and is subject to availability
For a complete guide to our patient assistance funds including policies and procedures, click here.
Are you waiting for a kidney transplant? Then you will want to know about the Kidney Connection. The Kidney Connection is a free service where those waiting for a transplant can upload their profile in the hope that an altruistic donor steps forward! It’s easy to share your story and you never know, there might be a donor out there just waiting for you! Kidney Connection is a partner organization to the NeKF. Upload your profile to the Albany area here, the Rochester area here and the Western New York area here. Just a note…we have had successful transplants occur because of the Kidney Connection. Will you be next?
Cooking for Your Kidneys:
Join our kidney chef John Vito each month as he prepares kidney friendly recipes and teaches you how to combine food science with his knowledge of the kidney diet to make Cooking for Your Kidneys a little less challenging and a lot more delicious! Learn more and check out archived sessions.
Real Kidney Living Podcast:
Real Kidney Living Podcast is a brand new podcast featuring Douglas Brown, two time kidney recipient, as our moderator. New episodes drop on the 1st and 3rd Wednesday of the month and explore everything from treatment options to living well with a transplant. Real Kidney Living is meant to uplift, inspire and share the kidney journey so no one has to walk the kidney journey alone. You can find us on Apple, Spotify and Itunes. Episodes are also archived on our website.
Each year, through the Shane Leone Memorial Scholarshio, young adults affected by kidney disease are offered scholarships to help with their pursuit of higher education. Applications are accepted January through March and award announcements are made in April.
Having Your Kidney Donor Find You:
Through a partnership with the Living Kidney Donor Network, we offer an online educational program for those waiting for a kidney transplant that teaches you how to pursue a living donor. Click here to access the training!
As a patient services and advocacy organization, we work to educate legislators at the state and federal levels about the healthcare decisions they are making and the impact on the kidney and transplant community. We also partner with a number of statewide and national organizations in representing the voice of the patient. If you are interested in becoming one of our kidney advocates, contact us at email@example.com. No prior experience is necessary…just a willingness to share your story and the desire to make a difference!